(2) Do not be satisfied with anything less than the best in care, follow-up and scheduling. You are paying for services. Therefore, YOU are the customer and the doctor and his cohorts are serving YOU. Don’t be intimidated and don’t accept abusive behavior from anyone!

(3) Be willing to change doctors and hospitals until you have accurate answers and top-notch care.

(4) Educate yourself. The National Library of Medicine is an excellent source for research, etc. as is The Mayo Clinic site. For my particular issues, I was delighted to get information at the University of Michigan’s site. Many of the university medical schools have sites where one may research any disease. Read books. And don’t let ANYONE discourage you from educating yourself.

(5) Be willing to look at alternative forms of treatment. There are natural approaches that far outweigh traditional medicine in many cases. For example: A year ago, I was told that I would have to have regular epidurals in my back for pain and eventually a rod placed in my spine for curvature of the spine. THAT sounded fun. (sarcasm there, folks) I am now under the care of a chiropractor who has succeeded in ridding me of any back pain and who has actually been able to straighten my spine significantly, without medication or surgery.

(6) Pray for discernment and direction: My son made a comment to me one day when I was very discouraged with the progression of my disease. He reminded me, “Mom. There is a healer so much greater than any of these doctors!” He is so right. Healing can come in spite of doctors. Healing can come as God uses doctors. And healing may never come. But one thing is certain, healing of the spirit is more important than anything else. With that peace is acceptance and an ability to overcome in the midst of disease.

I am going to make this a three day soap opera for you! Tomorrow, I’ll add the next installment. Will Dr. Moan find spots? Will Nurse Jane be able to draw blood on the first attempt? Stay tuned, as the world turns!!